Methods: This paper employs a single-case, autoethnographic study design where one of the authors uses their experiential insights, as mother of the patient, to inform a wider cultural and political understanding of the shift to remote caregiving for a pediatric patient with hEDS. In this paper, we provide insight into the quality of care coordination between providers and an informal caregiver following policy changes to the provider payment structure in Massachusetts. However, it is less clear how telehealth impacts the coordination of care. Delivering telehealth requires a high level of communication and coordination within and across providers as well as between providers, patients and their families.
Objective: This caregiver case study applies the lens of relational coordination theory (RC) to examine the value of telehealth as a medium of care coordination for a pediatric patient with hypermobile Ehlers-Danlos Syndrome (hEDS) during the COVID-19 pandemic.īackground: The COVID-19 pandemic has placed an unprecedented burden on the delivery of healthcare around the globe and has increased the reliance on telehealth services. 2The Heller School for Social Policy and Management, Brandeis University, Waltham, MA, United States.1Institute for Public Service, Suffolk University, Boston, MA, United States.
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